>Bye bye big bunny

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The Beast died today.

Here’s a happy memory picture — El Grande hugging Beast when we visited La Petite in her college dorm room. Despite his fearsome appearance and size, Beast was the most mellow, relaxed, even laziest animal you could ever imagine. He was our first bunny. He had developed some health problems in the last several months with loss of muscle tone due to kidney malfunction, among others. At age 10 (what’s that in rabbit years? don’t know exactly) he was getting to the end of his life expectancy, so when he could not move his legs this morning, it was a signal that he was at the end.

Beast was friendly as can be. He liked everyone, and everyone liked him. We used to bring him upstairs at bedtime to snuggle with El Grande. Beast could also shed like a trooper; we called it “Power Shedding.” If I’d kept track of the number of lint brushes we wore out over this bunny….

He would eat almost anything we put in front of him. In fact, he managed to eat big leaves from the garden broccoli plants today, even while ill. What a treat! We have home video of Beast as a baby bunny eating a wild carrot with long, long greens and inhaling it like spaghetti. Now Tiny, his little bitty friend, won’t have to gobble to get his fill. He can actually save some carrots for later! Tiny is lonely tonight, so he is living temporarily in El Grande’s room. We’ll make sure he gets lots of attention from the humans to help him adjust to his new status.

Beast was La Petite’s first pet; she did the research and built the first cage with her dad’s help. She loves rabbits and is a very caring pet owner. Beast always knew he was loved. She even handled the dirty work of cleaning Beast when his muscle tone got too weak to keep himself rabbit-immaculate.

Beast is buried in the wild section of our garden, close to his old friend Cora. The little marker has been repaired at least once since we buried the first one; maybe the glue will hold this time. 🙂

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>Send in the Idiots: Part 2

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Every reader approaches books with a unique background and attitude. When I read Kamran Nazeer’s Send in the Idiots: stories from the other side of autism, I read as a mother of an autistic teenager. With this perspective, I read closely when Nazeer talked about his classmates’ jobs and careers.
The young autistic adults in Nazeer’s book experience a variety of successes in the working world. Andre is a computer programmer who works in research. He is an expert in patterns and code, and works on new concepts in computers such as speech. The book doesn’t spend much time on Andre’s work, perhaps because his unique social relationships take precedence.
Randall is a bicycle messenger in a large city. His autism at times interferes with his work, but he is successful overall. For example, if anything, major or minor, is wrong with the bike, he has to stop and fix it immediately. This can put him behind on delivery deadlines. His supervisor understands this, and because Randall is an otherwise excellent employee, gives him leeway to manage this.
Craig, the child who once chanted the title phrase “Send in the idiots”, is now a political speechwriter. He excels in this field and writes for many prominent candidates. He has mastered the art of the sound bite, the 20-word debate answer, and the skills to weave policy and issues into motivational phrases that will rally an audience. This type of work is unsteady, however, and his skills in written language do not transfer into the interview setting. After a major election, Craig finds himself out of work and unable to connect with potential employers, even though he is an extremely capable writer. His social limitations present a roadblock to his professional success.
Social adeptness or lack of it can be a major factor professionally and personally. Later, I’ll post a short talk about social relationships in the book – another concern parents have for their children.

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>Breaking News — Orange Alert

>Is it typical of our egocentric society that my first thoughts were for the effects of this news on my family? Among the swirling thoughts of relief that the plot was discovered and prevented, the inconveniences on international and domestic travel, and the economic effect on already-struggling airlines, my clearest and most immediate thoughts were for those closest to me.

We rarely fly. I’m grateful that La Petite flew to France two years ago, not two days ago. I’m grateful that Husband and El Grande took their flight (El Grande’s first!) a month ago, not today.

Since Husband works in the local media, this will have an immediate impact on him. The prez is coming to town to raise money for a local condidate, and Husband will be part of the crew that covers it. As if that weren’t enough, another crew or two or three will have to cover the local airports. Are there enough live trucks to go around? I remember 9/11/01 and how he worked close to 12 hours, interrupted only to wait in the panic line to fill his car with gas so he could get home that night.

El Grande slept late today, and when he got up I pointed him to CNN to find out what’s going on. He’s old enough to know, but his autism sometimes means that I may have to explain and put things in local perspective for him. Right now he’s watching and saying Wow. We talked, and I think he understands.

Yes, I guess it’s natural for a mom to think first of her family. Now that I’ve settled my mind on that count, I can begin to appreciate the global impact of the latest on the terrorism front. And like El Grande, I can only say Wow.

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>It could be worse, I guess

>The saga of the dishwasher continues. I keep getting really down about it and other things that have gone wrong, but somehow I’m just not meant to be down for long. Something always seems to come up and remind me that it could be worse — could be raining.

I was dragging myself through washing dishes last night before bed and feeling exhausted, when I realized that I may be saving water. Our water bills may be going up (way up) in the next year or two or five, so anything that saves water is good.

The estimate from the appliance repair dude is for $281. Tonight we will windowshop for dishwashers to see if it’s worth our while to replace or if we should repair. Either way, it’s a big cost. But it could be worse — at least we have a choice.

I was about to wash dishes mid-day when La Petite got in the shower. Drat. I did the dishes after she finished and delegated the folding of laundry (towels and dish cloths, mainly) to her. I couldn’t really complain, although I wanted to. After all, she is home from college and able (and willing!) to chip in on housework and yardwork. I have time to wash dishes, whether I want to or not, because I teach in a public school district that hasn’t adopted year round school … yet. The timing could have been much worse — the dishwasher could have held on until school started, and broken down in September.

The Husband’s car needed repair. La Petite’s tuition, etc., is due, um, now. El Grande’s registration fees and the works are due tomorrow at the high school. But it could be worse! They successfully repaired the car this time. The tuition can be paid in installments. El Grande’s fees are a one-time deal; I’ll pay tomorrow and be done.

Drat. Just when I think I can get away with being crabby, I realize that we haven’t hit bottom quite yet. But really, people — all this and PMS, too? I give in: I’m CRANKY!

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>The Happy Composter

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Here it is with lid back on! Yes, we moved the branch that you see. The small pieces got mulched, and the big pieces went to the brush dump. The mulch (you guessed it!) is now under cover combining in its natural way with coffee grounds, stale popcorn, banana peels, corn husks, and more. My garden will be sooooo happy in the spring! A simple pleasure for the home composter — a lid that stays on.

I know, I’m easily pleased. I’m not a Pollyanna type, though. When the fence kept leaning more and more and eventually knocked the lid off for good, I was frustrated and cranky. The weather was at its hottest and most humid, so tearing down a fence wasn’t on the agenda. Then the heat wave broke — and it rained. That poor lid stayed off for amost three weeks before we took action.

If only replacing a dishwasher were as simple as cutting down a fence!

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>Dad’s knocking down a fence so Mom can play in the dirt!

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Compost happens. Naturally. If it can. If it has a decent balance of wet and dry (green and brown), a little moisture, and gets stirred now and then. My poor compost bin was drying out because its lid kept falling off. One rickety section of a backyard fence was leaning on it, and leaning hard.

There used to be three sections of fence. The first two fell in a storm, so we asked the property owners next door if we could take the fence down for safety’s sake. They said sure, of course! Thanks for helping out. We put the old boards to use as stepping “stones” in the garden.

That was 9 years ago. Since then, the friendly neighbor tree grew, and grew, and grew until it pushed what was left of the fence aside and into my bin. Well, moving a full compost bin is not in the realm of easy possibilities. So finally, I grabbed a hammer and Husband grabbed an ax and we went outside to be destructive. Now we have more boards for stepping “stones” and a much happier composting mama. The balance of wet and dry (green and brown) is maintained, the moisture stays moist, and I can take off the lid and stir it with a pitchfork once in a while — and replace the lid when I’m done. 🙂

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>Send in the Idiots: Introduction

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Send in the Idiots: stories from the other side of autism by Kamran Nazeer, is a new book being discussed on the autism circuit. Nazeer has autism, and he was enrolled in a special school for autistic children when he was young and lived in New York. Twenty years later, Nazeer re-connected with some of his classmates from those early years. This book is a description of their interactions and an analysis of what it’s like to have autism in today’s world.

My first reaction was an immediate aversion to the title. Idiots? Mother of a child with Asperger’s syndrome, cousin of a more severely autistic adult, and friend of many families with children on the autism spectrum, the word “idiots” struck me negatively. Based on two positive reviews, I bought the book anyway. I’m glad I did.

Send in the Idiots takes its title from an echolalia phrase repeated by one of Nazeer’s classmates. Echolalia is “…the constant disconnected use of a particular word or phrase” (p. 3) that has no meaning to others, but helps the autistic person keep order in his or her own mind. It can be repetitive or associational, predictable to those close to the person, but otherwise meaningless. The title phrase Send in the Idiots doesn’t label the children, as I feared, but is itself an example of an autistic behavior and coping skill.

Send in the Idiots is an easy read. Kamran Nazeer explains technical terms in everyday language and uses effective examples of his own or from his classmates’ lives. In fact, I’ve had to force myself to set the book down at times to resist skimming it too quickly. I want to read thoughtfully and digest every word.

I’ll post more reviews as I continue to read this valuable and fascinating book.

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>It’s all in your Point of View

>We attended a minor league baseball game last night, courtesy of our local car dealership. They paid for general admission tickets and a picnic supper before the game. An experience like this with a blind/Aspergers child is fun, but a little different.

The conversation:
Mom: Let’s find a place to sit on the grass and eat our hot dogs.
El Grande: No, I don’t know how! I don’t know how to eat sitting on the ground!
Mom: We’ll help you figure it out. Would you like a Mt. Dew to drink?
Dad: I’ll go get a blanket from the car; you two find a place.

Reading between the lines, or the interpretation.
Mom: Let’s settle down soon.
El Grande: Oh, no! I’ve never done this before! I might spill if I can’t see my food! It’s too crowded and loud to concentrate and learn something new! I hope I don’t have a melt-down.
Mom: Oh, no, I’d better help him stay calm. I hope he doesn’t have a melt-down.
Dad: I’d better go get something to help smooth this situation. I hope he doesn’t have a melt-down.

the next installment:
Mom: Here’s your hot dog.
El Grande: What can I use for a plate?
Mom: I’ll give you the foil wrap to put on your lap.
El Grande: Okay. What did you get me to drink?
Mom: Dew. Do you want me to open it?
El Grande: No. I can do it myself.

Reading between the lines:
Mom: Here’s your hot dog. Oh, I hope this works.
El Grande: What if I drop it? I’ve never done this before without a table.
Mom: Maybe this will reassure him.
El Grande: Okay, this is a little more like normal.
Mom: He’s settling a little. Maybe I can help…
El Grande: I’m settling a little. I can open the can myself now.

The next installment:
Dad: Here’s a blanket. Scoot over.
El Grande: Okay. Dad, do you want chips?
Mom: This is a blanket that it’s okay to spill on.
Dad: Yeah, it’s the one from my trunk.
El Grande: Yeah, this is more comfortable.
Dad: We’re sitting right next to a new convertible model.
El Grande: Cool! Can I have another hot dog?

The interpretation:
Dad: I hope everything’s okay and I’m not too late.
El Grande: I fell better now that I’m eating. Eating is normal.
Mom: I know he panics if he spills. I’ll remind him that spilling isn’t a catastrophe.
Dad: He panics if he spills in public.
El Grande: Yum. I wonder if they’ll let me have another hot dog?
Dad: Let’s change the subject. I’ll distract him.
El Grande: Everything’s fine now. Can’t you two stop worrying?

Yes, parenting is different when the child can’t see and has autism. Sometimes his high-level functioning causes us to forget that he still fears certain unknowns, especially those that could end up in “disaster” like spilling in public.
The baseball game ended up being fun. We had general admission seats on a grassy hill, so we stretched out on the blankets to watch the game and the other fans. El Grande knows all the cheers that go with the stadium music, so the younger kids were awed by him and the other grown-ups smiled and joined in. We caught a souvenir ball, one of the many goodies they toss to the crowd. (Last summer I caught a t-shirt.) The team lost (14-4, ouch!), but the post-game fireworks were great. And I must admit, we enjoyed the popcorn and beer, too.

It’s all in a day’s work for parents. When the child is disabled, it raises the bar a bit, but it all works out in the end. Take me out to the ball game!

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>Mom’s outside playing in the dirt — again!

>I planted some old seeds today. They were old not in the heirloom sense, but in the found-them-in-the-closet and who-knows-when-they-were-stored-there definition. I teach science. as part of my many roles. Last spring I cleaned out my classroom closets of all old science materials to make room for the new curriculum kits. I found a big bag of spinach seeds. Spinach? I don’t remember needing spinach seeds for any of the experiments and activities I taught. These must have been stored by one of the teachers that had the room before me. One is retired now, and the other is deceased. The only date I found on the packages said 1997. Was that a “plant by” freshness date or a purchase date? I’ll never know. So in my philosophy of waste not, I planted them. My garden soil is still moist from yesterday’s watering, and the tomato plants are growing like crazy. I know the soil is fertile. If the seeds don’t come up, it won’t be the soil. It’ll mean they’re simply old and dried beyond usefulness, so I’ll compost the rest. If the spinach comes up, it means more bunny food for Beast and Tiny and the little house bunny, Nut!

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>Controversy’s busting out again.

>Wasn’t it enough when Victoria’s Secret stores, the hotbed of hot lingerie for hot young women, refused to allow a woman to breastfeed (in a discreet and isolated corner, mind you) in their store? Now a magazine for mothers of babies — Babies! — has generated more negative PR for mothers who are able and willing to breastfeed their infants.

One article on the cover is here. This article displays a bias, however. If you can look past the spelling error on the word “gauge” (those always lower a reporter’s credibility in my eyes), read the statistics. Apparently the magazine received 5,000 letters and emails, and 25% had a problem with it, leaving 75% either in support of it or neutral. This does not support the headline of “Breast isn’t Best: readers tell U.S. parenting magazine.” For a more objective report, try this report.

There are a few details to remember before hauling off and bashing mothers or magazine publishers.

  • This magazine is not on newsstands; no one will accidentally be “forced” to see the cover. It is distributed free through OB/GYN offices.
  • Breastfeeding itself is not sexual, and neither is the photo.
  • The goal of this photo was to illustrate an article, not to excite or titillate (sorry, couldn’t resist).

So don’t get your undies in a bundle or your bottle in a battle. Moms have enough on their shoulders (and other parts). Let the babies eat. And let the magazines show it happening.

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