Next election: we’re ready

One election down, another coming up in one month. In one month, Wisconsinites will decide who will challenge current Governor Scott Walker in a recall election. At least one young voter is ready.

Amigo uses an adaptive voting machine called an Auto Mark. It scans the ballot, reads it aloud (with headphones to preserve the voter’s privacy), and at the push of a button, marks his vote.

When he was finished, he proudly wore his sticker.


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What’s Goal Ball?

I asked the same question at first. Amigo explained the playing techniques, but I still couldn’t picture it. I looked it up online and found out that goalball was developed after WWII as a sport for blind veterans. Today the unique game is part of paralympics, and many schools for blind students have a competitive team.

Amigo’s team lost a close one, a heartbreaker of a game in overtime, to eliminate them from the conference competition. The coach arranged an informal scrimmage with the team from Iowa so that both teams could play a little more. These pictures are from the scrimmage.
First: Amigo is not sleeping. He is in ready position with his arms and legs stretched out to cover as much space as possible. If the ball comes his way, he will block it.

You may have noticed details about the gear. Players wear hockey shorts, the padded kind, along with knee and elbow pads. All players also wear covered goggles or sleep shades to eliminate any residual vision they might have. The goggles prevent a player with some vision from having an advantage over a totally blind competitor. All players compete totally sightless.

The ball itself is soccer ball size, hollow, with bells inside it. Players track the ball by listening intently. They keep track of their positions on the court by calling for a “tap” – a player to slap the floor. In this photo, Amigo is the right wing. The girl in the middle is the center. Before he rolled the ball, he called, “Center Tap!” and she slapped the floor so he could hear where she was and plan his throw. All this happens quickly; the team must get rid of the ball within ten seconds.


Here goes the throw – or more precisely, a roll. If the ball appears a bit blurry, that’s because Amigo rolled it quickly. In fact, he rolled it so low and so quickly that the bells were effectively silenced – a technique that makes blocking difficult. He scored on this one. Yeah, Amigo!

Goalball. It’s unique, it’s fun, it’s competitive. And when the competition is over, the team members socialize with an awards ceremony and a dance. The tournament? Great. The opportunity to socialize with other teenage blind athletes? Priceless.

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>Celebrating Abilities Week and more

>Sometimes there are just too many celebrations and commemoration days/weeks/months. This week in my fair city the downtown area and the school district have their version of Disability Awareness. In our neck of the woods, we call it Celebrating Abilities. I’ve had concerns about the way this group has portrayed disabled people as cute, incapable, very needy children. In the past few years they have changed their focus for the better. A few years ago they sponsored a recital that included a blind violinist and a cellist with one arm. Both are very talented musicians.

This year the theme is faces: the face of disability. Promotional posters feature adults, many of whom work at Goodwill Industries. It’s a step forward, but also a step back, as the majority of the poster models have cognitive disabilities.
Why not take this a step farther? Follow a disabled adult like me through a normal workday. It might be dull, and maybe that’s the point. I need some accommodations, but I’m an average, everyday professional on the job. I’m not a poster child for anything; I’m a teacher. A teacher with a hearing impairment, yes, but mainly a teacher.
I announced my new hearing aids to my coworkers via email, the norm in our online environment. I explained that I was adjusting to the new technology and they might need to bear with me for a little while. Within three minutes I had several replies, all positive.
One called me a good sport and an inspiration.
One thanked me for educating him about hearing loss.
Several wished me good luck with the transition.
One put a lump in my throat with her supportive comments.
This is the reality of being a disabled person. In some work environments, my hearing loss was basis for bullying and ridicule. In a positive work climate, dealing with my disability is not a big deal. My coworkers and I simply, well, deal with it, pass the coffee, and get back to work.
October’s calendar also sports a depression awareness movement. Our wellness department, officially called the Office of Lifestyle Enhancement, included in their newsletter a short paragraph and several information links. One year ago, I could have been the poster model for this devastating illness. I’m recovering – not recovered yet, but making major progress. Working with positive people is a huge factor in developing peace of mind. A safe workplace makes a big difference as I’m healing – and beyond.
If you’re interested, here are the links:

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>New Decor: Amigo’s Awards

>We’ve redecorated, courtesy of Amigo. I’ve actually had these up for several weeks, but I didn’t have a picture. Amigo thought the picture would make a good Wordless Wednesday. Oops, I just added words!

These are Amigo’s awards from school! They included participation awards and special recognition, too. The plaque on the left is for the highest point total for a beginner in Forensics. the plaque on the right is a sportsmanship award for wrestling.
Here’s the close-up of his school letter. He earned the letter and pins for track, drama, and forensics. Impressive, at least in my view!
I’ll keep them up until they get dusty or until something else comes up. It’s fun to look at evidence of his success every time we come in the room. All in all, he’s a pretty awesome teenager.

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>Fun with Closed Captioning

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Closed captioning can be entertaining.
There was the time I was watching an Olympic hockey game (USA vs. Canada: USA! USA!) and the closed captioner typed “honky talent” instead of “hockey talent.”

How about this one: “Inaudible lyrics.”

Then there was the Piggly Wiggly commercial – or was it just a sponsored voice-over? – that should have read Shop the Pig but instead was captioned “Slop the Pig.”
How about the captioner for the Today Show that had Hoda saying “Good Booze Day Morning!” instead of Tuesday morning?
Did you see the opera singer who competed on The Biggest Loser? She was on the Today Show, and the captioner wrote Oprah for Opera. Now I know Oprah’s all over the headlines right now, but she’s not an opera. Not yet.
A political hot potato turned into “hot spot state toes.” The discussion was a federal budget issue, too, not a state conflict. Not that my fair state of Wisconsin is lacking in political conflicts….
Chuck turns off the closed captioning when he watches Gordon Ramsey for two reasons: 1. I can’t stand the guy. 2. The captioning consists of “(bleep) (bleep) (bleep).”
Enough already. Or do I mean Enough All Red Ye?

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>Not everyone loves the rising phoenix

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God help you if you are a phoenix
and you dare to rise up from the ash
a thousand eyes will smolder with jealousy
while you are just flying past
–Ani DiFranco, “32 Flavors”

The quote from “32 Flavors” resonates with me, and not necessarily the way DiFranco intended when she wrote the song. Recently I told my family that I am tired of being a trailblazer. I’m hearing impaired. I teach, I write, and no one in the school district seems to know what to do with me. They’re accustomed to shuttling their disabled students off to special classes, but a disabled, capable, professional? They’re stumped.

Maybe the image from DiFranco’s song is what I need. If I can re-imagine my role not as the one out front stepping in front of the crowd, leading the way through the mud and getting slashed with low-hanging branches, if I can envision instead the phoenix rising from the ashes, it might give me the strength to fight my battles and leave a good, clear path for those who follow.

It’s not easy being – well, it’s like Kermit the Frog. It’s not easy being different. I wonder if some perceive my success as somehow easier, rather than harder, than theirs. Do they think I got a break because I don’t hear well? I have a hearing aid compatible phone. I.T. provided me with a longer cord so the computer monitor doesn’t interfere with my telecoil setting. Those reasonable accommodations, however, didn’t make teaching easier than it is for other, non-disabled teachers. These accommodations merely leveled the playing field.

Now I’m moving to a new position, one that I feel will be a better fit for my abilities than attempting to hear and react to a large, noisy classroom. I applied for and got this job through seniority, not through disability. I hope no one thinks I’ve jumped the line by virtue of my hearing loss. Then again, who cares? Anyone who thinks so is wrong. I know what the truth is, and if I rise from the ashes on my own, it’s a gain for all around me.

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>To ADA or not to ADA?

>”Don’t throw ADA at me; it makes me angry.”

Let’s set aside for the moment the fact that the principal who growled this at me was actually quoting the wrong law; he should have said “IDEA” or the Individuals with Disabilities Education Act. This quote is a strong memory from Amigo’s primary years. We’d reminded the principal that he needed to use appropriate methods for dealing with a blind child, and he put on an attitude. That attitude was part of his problem; he didn’t want to recognize the need for reasonable accommodation, much less take responsibility for accommodating for a student’s disability.
Now the position is different. I’m seeking reasonable accommodation for my hearing loss. I’ve handled all necessary adaptation for fifteen years – buying and maintaining hearing aids (not covered by insurance), working with the IT dept. to get a usable phone and a slightly longer cord so the computer didn’t interfere with the telecoil settings on my hearing aids.
Now I’m seeking a preferential placement: one that will allow me to use my teaching skills, but not constantly adapt to noise levels around me. It’s taking forever, and I don’t feel supported. Thanks to our clueless governor, when our contract expires in July, I may no longer have a professional association for support, either.
ADA, however, is a federal law, not state. It should still work in my favor. I’m not talking about a lawsuit or taking anyone to court; I’m just looking for a way to continue teaching despite my disability.
Documenting this disability feels impossible. I jumped through hoops to get an appointment with the Ear, Nose, & Throat doctor (ENT), who told me he couldn’t write what I needed because he had no knowledge of teaching. He then referred me to a doctor in Occupational Medicine. My regular clinic wouldn’t take me unless I get a referral from my employer or it’s a workers’ compensation case. The other large medical group in town agreed to make an appointment. Now I just have to worry about whether or not this doctor can write the letter I need.
This garbage is not helping my depression recovery. Not a bit.

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>Daisy and the Gatekeeper

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Actual phone call with clinic; I am not making this up.

Me: I’d like to make an appointment to see Doctor DHH (deaf- hard of hearing).

Gatekeeper: Regarding?
Me: Creating a letter discussing medical accommodations for my job.
Gatekeeper: Oh, we don’t make appointments for that. He just writes a letter.
Me: He already wrote a letter, and my attorney says it’s not suitable.
Gatekeeper: In what way?
Me: It needs to be specific, suggesting an accommodation and giving a medical reason for that accommodation. I need to talk to Dr. DHH. Could you please check his schedule?
Gatekeeper: We write letters to employers all the time. The one you have should be sufficient.
Me: I’ve run it by my attorney, and she says it’s not specific enough. I’d like to talk to Dr. DHH so we can draft a new one.
Gatekeeper: We send these out all the time to employers and SSI for disability cases. No one has ever had a problem with this.
Me: Please schedule an appointment for me so we can resolve the letter completely.
Gatekeeper: Oh, no, instead let’s see what’s in your file.
Me: (pacing next to phone)
Gatekeeper: Okay, he sent a more detailed letter to your family doctor and a short one to you. You picked it up two days ago.
Me: Yes. I have it. It’s a short summary, and it needs detail. Maybe Dr. DHH could call me.
Gatekeeper: Let’s see if the family doctor letter has what you need. We could send that one.
Me:(pausing while she looks it up)
Gatekeeper: Maybe you don’t need a doctor’s letter at all. You just need the audiology report.
Me: No, I’ve already asked. I need a letter from an MD. If I need to include audiograms, I have several years of them on file.
Gatekeeper: Oh, Dr. DHH won’t need more. He has the one from November.
Me: If he needs to show that the loss is progressive, he’ll need a series of audiograms over time.
Gatekeeper: Oh.
Me: Shall we schedule an appointment?
Gatekeeper: No, I’ll ask Dr. DHH if we should use the medical letter.
Me (firmly, but politely): I will stop by to pick up a copy. Do not send it to my employer until I’ve reviewed it with my attorney.
Gatekeeper: Oh. Well…
Me: I’ll pick it up Monday morning. See you then!
Notes: I managed to make an appointment a week later by going through a different receptionist. Dr. DHH was appalled to hear that his “gatekeeper” had refused to schedule my appointment the first time I called. We’re still working on the disability documentation, but at least I made it one more step up the ladder.

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Fit in or stand out?

“Why do you try so hard to fit in when you were made to stand out?”

This quote turned up again, this time in my Plurk network. It strikes me in a sensitive place, as always.
I am different.
I have a hearing loss.

I wear two hearing aids.
And…

I teach.
I am educated.
I am articulate.
So which is it? In education we claim to value differences. However, I see more pressure to conform, pressure to follow the same path and be just like the others. We differentiate and adapt for our students, but not for each other.
Being a teacher and being different do not mesh well.
I may not always hear you perfectly, but when I know what you’ve said, I can address it and answer you in complete sentences. My hearing loss didn’t stop me from earning an undergraduate degree from a Conservatory of Music and a graduate degree in Curriculum and Instruction. I can write a research paper and quote the studies that support each point I make. I can write a letter that’s short and succinct and yet complete enough for the newspaper to publish. I can write a grant application that brings my class and my school much-needed money.
So which is it? Square peg or round hole? Fit in or stand out?
I still don’t know.

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>Amigo gets athletic, takes show on the road

>”Mom, you should write a post about me and wrestling and going to Ohio.”

Wow. The teenager wants me to post about him? Cool! And his new involvement in athletic competition is cool, too.
He called us Saturday night as they got on the bus to come home from a wrestling meet in Ohio. The state schools for the blind compete against each other, which means travel. Road Trip! Amigo enjoys road trips, so this is just another piece of the whole positive experience. He can tell me the route they took to get from Wisconsin to the other schools, the choices of highways if there are more options than one. He packs his armband radio and explores the states by finding local radio stations and getting local flavor.
Back to Saturday night. He talked about the meet, how he’d done, and the ribbon he had that he could bring home. Of course we talked about the upcoming Super Bowl – did you have any doubts, readers? He’s as wild and crazy a Packers fan as I am. As his bus rumbled down the Ohio turnpike, Amigo shared updates of the meet and I shared updates from home, including Super Bowl plans.
Sunday night he called again. There was one more adventure on the road; the bus broke down near Champaign, Illinois. The repair was major, a new bus had to come get them, and they arrived back at their dorms in Wisconsin at (are you ready for this?) 5:30 A.M. Sunday. Ouch. He slept until noon, and was still tired when we talked to him Sunday night.
Wrestling is his third sport this year. Amigo started the year in track and field, then participated in Goal Ball, and followed those with wrestling. We were amazed at first; he’s a sports fan, but other than the Challenger League summer baseball, he’d never competed in team sports.
He’s had a great experience in many, many ways. Enjoying practice with his peers, making progress in his own abilities, surprising himself in competition, win or lose.
And then there were the road trips. He and I might have to do more road tripping next summer; he has so many stories to tell, and being on the road is a great way to bond and share tales.
As long as he doesn’t expect me to wrestle with him, all will be well.

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